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SMDM Symposium on The Learning Healthcare System

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Professor Brendan Delaney represented the TRANSFoRm Project at the 36th Annual Meeting of the Society for Medical Decision Making, held on 18-21 October 2014 in Miami.

A Symposium on The Learning Healthcare System: Using Big Data to Improve Systems and Advance Care in Communities was chaired by Prof Delaney and David Chartash, joint chairs of SMDM Medical Informatics Interest Group.

Prof Delaney also presented a talk during the Symposium on Electronic health records and shared semantics, describing work done as part of the TRANSFoRm project to establish standards for the integration of SYSTEMS for clinical care and research. These include clinical trial and cohort studies using research data collection at source within health record systems and challenges in the representation of information for clinical and research purposes.

For more information on the Society for Medical Decision Making, please visit http://smdm.org/

 

 

TRANSFoRm presentations at 19th WONCA Europe Conference, Lisbon

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WONCA

3 July 2014

Remote Patient Health Condition Monitoring for Clinical Research (1121)

Piotr Brodka, Przemyslaw Kazienko, Anna Andreasson, Kazimierz Fraczkowski, Andrzej Misiaszek, Stanislaw Saganowski, Lei Zhao, Vasa Curcin, Theodoros Arvanitis, Brendan Delaney, Radoslaw Michalski

3 July 2014

TRANSFoRm: Assessing the potential of eHealth to transform patient recruitment and follow-up in primary care studies (1559)

Nikolaos Mastellos, Anna Andreasson Vasa Curcin, Robert Verheij, Karin Hek, Josip Car, Brendan Delaney

4 July 2014

Semantic Approach to Achieving Interoperability between Clinical Care and Clinical Research (1282)

Vasa Curcin, Theodoros Arvanitis, Jean-Francois Ethier, Kazimierz Fraczkowski, Przemyslaw Kazienko, Piotr Brodka, Anna Andreasson, Grzegorz Blizniuk, Sarah Lim Choi Keung, Lei Zhao, Andrzej Misiaszek, Mark McGilchrist, Anita Burgun, Brendan Delaney

Conference website: http://www.woncaeurope2014.org/

Workshop: Clinical Research Informatics Solution Days, Dusseldorf 26-27 May 2014

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A two-day workshop “Clinical Research Informatics’ Solution Days” will be held on 26th & 27th May in Duesseldorf, Germany.

It has been organised by ECRIN and other EU-funded projects (TRANSFoRm, EHR4CR, p-medicine, BioMedBridges and ECRIN-IA) to bring together experts, users and innovators from the clinical research domain.

During the workshop an overview of IT-tools and services for modern Clinical Studies will be given. The tools and services will also be demonstrated in interactive hands-on sessions.

Register free of charge at http://www.clinical-research-informatics.com/

Workshop Programme and Information available at http://www.clinical-research-informatics.com/

Aim of the workshop

The workshop will aim to give interested persons an overview on solutions to improve clinical trials developed by EU funded projects or infrastructures. In interactive sessions, developers will demonstrate their tools. The usability, maturity and benefit for clinical trials will be evaluated and discussed. The targeted audience ranges from software developers to potential users as well as clinical researchers and trial specialists from academia and industry in charge of managing, planning and performing clinical trials.

Highlights

  • Tools and services for trial data management (CDMS)
  • CDMS for personalised medicine
  • Tools for protocol feasibility and patient identification and recruitment
  • Imaging tools for clinical research
  • Biobanking tools for clinical research
  • Tools for study registration/ access to published trial data
  • Bridges between experimental and clinical research data
  • This workshop is free of charge

 

AMIA 2014 Clinical Research Informatics Summit – TRANSFoRm Panel and Presentation

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AMIA 2014 Joint Summits on Translational Science (Clinical Research Informatics and Translational Bioinformatics)

http://www.amia.org/jointsummits2014

CRI09: Panel – TRANSFoRm Digital Infrastructure: The Architecture for The Learning Healthcare System in Europe

“TRANSFoRm digital infrastructure: The architecture for The Learning Healthcare System in Europe”

V. Curcin; T.N. Arvanitis; P. Brodka; D. Corrigan; B. Delaney

Abstract: The Learning Healthcare System (LHCS) refers to the close coupling of clinical research and the translation of research into practice in a cycle of continuous improvement. This vision permeates multiple domains, clinical as well as technical, and its realization is dependent on establishing standardized, secure, and traceable flows of data between these domains to maximize the research and clinical benefits.

This panel presents the model-driven software architecture designed in the TRANSFoRm project (www.transform-project.org), a large EU FP7 Integrated Project to develop a digital infrastructure for the LHCS in European Primary Care. The discussion will cover various components of the system, comparing them with similar tools in USA and Europe, and analyze how our modular approach supports collaboration with related efforts.

Four presentations will cover:

  • Overview of the components of TRANSFoRm model-driven software architecture
  • The TRANSFoRm software configuration for conducting epidemiological studies from primary care data sources
  • The TRANSFoRm software configuration for electronic data collection in clinical trials
  • The TRANSFoRm software configuration for diagnostic support

A discussion will provide an overview of other LHCS software work in the USA and Europe, with opportunities for collaboration and international standards development. We shall also detail the software engineering practices we used in developing the architecture, and dealing with highly heterogeneous domain models and established software standards associated with the domains.

CRI17: Papers/Podium Presentations – Using Electronic Health Records for Research in Multiple Settings

“Detailed Clinical Modelling Approach to Data Extraction from Heterogeneous Data Sources for Clinical Research”

S.N. Lim Choi Keung; L. Zhao; J. Rossiter; M. McGilchrist; F. Culross; J. Ethier; A. Burgun; R. Verheij; N. Khan; A. Taweel; V. Curcin; B. Delaney; T.N. Arvanitis

Abstract: The reuse of routinely collected clinical data for clinical research is being explored as part of the drive to reduce duplicate data entry and to start making full use of the big data potential in the healthcare domain. Clinical researchers often need to extract data from patient registries and other patient record datasets for data analysis as part of clinical studies. In the TRANSFoRm project, researchers define their study requirements via a Query Formulation Workbench. We use a standardised approach to data extraction to retrieve relevant information from heterogeneous data sources, using semantic interoperability enabled via detailed clinical modelling. This approach is used for data extraction from data sources for analysis and for pre-population of electronic Case Report Forms from electronic health records in primary care clinical systems.

AMIA 2013 Annual Symposium – TRANSFoRm Panel

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“International perspectives on the digital infrastructure for The Learning Healthcare System”

B.Delaney, King’s College; J. Ethier, University of Rennes; V. Curcin, Imperial College; D. Corrigan, Royal College of Surgeons; C. Friedman, University of Michigan

Abstract: The Learning Healthcare System (LHCS) refers to the close coupling of practice of clinical medicine with both the conduct of research and the translation of research into practice. This panel presents an outline of the TRANSFoRm project (www.transform-project.org), a large EU FP7 Integrated Project to develop a digital infrastructure for the LHCS in European Primary Care, and discussion contrasts this with similar work in the USA, considering the opportunities for international collaboration.

Four presentations will cover: The aims, requirements, and informatics approach of the TRANSFoRm project. The method adopted to access clinical data using a common clinical data information model The techniques developed to capture the provenance of the research process in conjunction with generated data. An ontology for Clinical Prediction Rules to provide integrated Decision Support for diagnosis using chest pain, abdominal pain and shortness of breath as exemplars. A discussion will provide an overview of work on the LHCS in the USA, with opportunities for collaboration and international standards development.

Panels – http://www.amia.org/amia2013/panels

Symposium – http://www.amia.org/amia2013

Presentation at SATBI + SWIM 2012, Boston

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“Development of an Ontological Model of Evidence for TRANSFoRm Utilizing Transition Project Data”

Authors: Corrigan, D., Soler, J.K., Delaney, B.

SATBI + SWIM 2012: Semantic Technologies Applied to Biomedical Informatics and Individualized Medicine

Proceedings of the Joint Workshop on Semantic Technologies Applied to Biomedical Informatics and Individualized Medicine

In conjunction with the 11th International Semantic Web Conference 2012 (ISWC 2012)

Boston, USA, November 12, 2012

Download (PDF, 536KB)

Workshop at MIE2012, Pisa

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“Measuring and Comparing Data Quality in Electronic Health Care Records” – Tate, A Rosemary, Verheij, Robert, Beloff, Natalia, Williams, Tim and Kalra, Dipak

MIE 2012: XXIV Conference of the European Federation for Medical Information “Quality of Life through Quality of Information”

25-29th August, Pisa, Italy

Presentations at 74th EPGRN Meeting, Ljubljana

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The 74th EPGRN meeting took place from 10-13 May 2012 in Ljubljana, Slovenia. The theme of the meeting was “Quality improvement in the care of chronic disease in family practice:  the contribution of education and research”. The TRANSFoRm project was presented on Saturday 12th May 2012.

Presentations:

Derek Corrigan (Royal College of Surgeons in Ireland, Ireland) – “TRANSFoRm: an ontology-driven approach to clinical evidence modelling implementing clinical prediction rules”.

Vasa Curcin (Imperial College London, United Kingdom) – “TRANSFoRm Provenance Model for clinical trial data collection”.

View the conference programme at:

http://meeting.egprn.org/files/ljubljana/PROGRAMMeOnlyLjubljana-Slovenia2012.pdf?phpMyAdmin=cynZqIzUqOvIoIB%2C7LJIYW0-1k0