“ECRIN (European Clinical Research Infrastructures Network) requirements” – Kuchinke W.
Research Community Presentation at: EUDAT 1st User Forum.
7 March 2012 – 8 March 2012, in Barcelona, Spain.
http://www.eudat.eu/1st-eudat-user-forum
The TRANSFoRm Zone Model of data privacy was presented at the e-Science Workflows Workshop (Thursday 09 February 2012 – Friday 10 February 2012) in Budapest. ECRIN has been invited by EGI (European Grid Initiative) to present a research problem where workflow, cloud and grid technologies could be a solution. EGI is searching for potential users of their Grid services coming from the health research domain.
Therefore, for the e-Science workshop, Dr. Wolfgang Kuchinke presented the TRANSFoRm privacy model: here the different data access, pseudonymisation, anonymisation, aggregation and encryption operations of the data flow from the care zone to the research zone could be done by workflow systems and the grid in the background of the clinical trial process. The workshop took place in the MTA SZTAKI (Hungarian Academy of Sciences) building in Budapest.
“A flexible zone model for data privacy and confidentiality in medical research”
Wolfgang Kuchinke (1), Christian Ohmann (1), Evert-Ben van Veen (2), Robert Verheij (3), Adel Taweel (4), Brendan Delaney (4)
(1) University of Duesseldorf and ECRIN, (2) MedLawConsult DenHaag, The Netherlands, (3) NIVEL, The Netherlands, (4) King’s College London, UK. Workshops on e-Science Workflows 09 Feb. 2012 – 10 Feb. 2012, Budapest
Further information: http://www.egi.eu/blog/2011/11/18/joint_workshops_on_e_science_workflows_in_budapest.html
“Integrated Vocabulary Service for Health Data Interoperability” – Authors: Lim Choi Keung S. N., Zhao L., Tyler E. and Arvanitis T. N.,
Fourth International Conference on eHealth, Telemedicine and Social Medicine (eTELEMED 2012), Valencia: Spain, 124-127, 2012.
16th WONCA Europe Conference, Malaga, 6-9 October 2011
“Translational Research and Patient Safety in Europe (TRANSFoRm)”
Brendan Delaney, King’s College London
The TRANSFoRm data privacy framework was presented at GMDS 2011 in Mainz, Germany (in German).
“TRANSFoRm: ein flexibles Datenschutz-Rahmenwerk für die integrative Forschung mit medizinischen Versorgungsdaten, Datenregistern und klinischen Studien”
Wolfgang Kuchinke (1), Christian Ohmann (1), Evert-Ben van Veen (2), Robert Verheij (3), Adel Taweel (4), Brendan Delaney (4) im Auftrag vom TRANSFoRm Consortium. (1) University of Duesseldorf, (2) MedLawConsult DenHaag, The Netherlands, (3) NIVEL, The Netherlands, (4) King’s College London, UK.
GMDS 2011, 28 September 2011, Mainz
The TRANSFoRm was presented at the 18th EuroSPI2 Conference in Roskilde University, Denmark, 27-29th June 2011.
“A Proposed Framework for Software Quality in the Healthcare and Medical Industry”
V. Shroff, L. Reid & I. Richardson, Lero The Irish Software Engineering Research Centre, University of Limerick, IE
European System & Software Process Improvement and Innovation (EuroSPI) 2011 Conference, Roskilde University, Roskilde, Denmark. 27-29th June 2011
“The correct e-mixtures (A fully validated EHR, the way forward)” – Delaney B.
Presentation to DIA EuroMeeting, Copengagen, 28 March 2012.
This project has received funding from the European Union’s Seventh Framework Programme for research, technological development and demonstration under grant agreement no 247787 [TRANSFoRm].
